Trinity baby diagnosed with diabetes finally gets life-changing - | Lufkin and Nacogdoches, Texas

Trinity baby diagnosed with diabetes finally gets life-changing equipment


A popular Trinity family experiences the throes of caring for their young baby who's diagnosed with type one diabetes.  Since Baby Jones doesn't speak much yet, communicating his low blood sugars before life threatening levels is impossible. Tonight, the family is elated to have finally received equipment that will communicate for him. 

“This gets his insulin to him. One of the benefits for us is we're not having to give him somewhere around five shots a day,” said Steve Jones, Adam’s Dad. 

Patience, dedication, and faith are chief characteristics the Jones family exhibits daily while caring for their 17 month old baby, Adam, diagnosed with Type one diabetes. 

“It was jumping through hoops to get to where we are now,” said Melanie Jones, Adam’s Mom. “There are so many kids like him misdiagnosed every day because unfortunately they don’t check for that.”

After life threatening instances and support from the city of Trinity, the Jones’ can finally feel a sense of relief.

“It doesn't take away all that panic, but it does take away 90% of it,” Melanie said.

The Dexcom and an insulin pump are now a part of Adam’s daily wardrobe.  They monitor his sugars and disperse insulin as needed.

“Now the pump will act as the pancreas instead of giving him the shot,” Melanie said.

Melanie said Adam would flinch after eating, fearful of the sting of pain he had become so accustomed to following meals.

“We still have to be the brain. We still have to tell the pump what to do for him,” Melanie said.

With the Dexcom and pump, Adam’s sugar levels can be watched, and the guilt of pricking the giddy baby is lowered.

“It’s good to know that we don't have to stand on top of him constantly. There's a little bit of a backup there,” Melanie said.

The Jones say the experience has taught them a lot about the complexity of living with diabetes.  It’s expensive but, “Who cares? If we have to go without television, we will have the DEXCOM. His life is worth it.”

Plus, comments about diabetes prevention can be frustrating like one a crossfit tweeter made.  It read, “Poor one out for your dead homies,” with a picture of a soda beside it. It insinuated that sugary sodas and poor health are causes of diabetes.

Steve says he understands that with a certain type of diabetes, people who are overweight might have been able to prevent it.  

“People like Adam diagnosed as a baby did nothing to get this,” Steve said.

Despite the daily struggles, the Jones have faith. They’re already prepared to encourage Adam with inspiration like athletes and active people excelling with Type 1 diabetes. 

“I love that, and those are going to be people that we show Adam in the future and show him, this is what you can do,” Steve said.

"Everyday is a new challenge. We don't use the word control in our house. Every day is a new day,” Melanie said.

Adam will always be insulin dependent, but his new equipment and support will ease a night’s sleep for the Jones’. 

“We're okay with that because we're going to get through it,” said Steve. 

Powered by Frankly